TYSON MATTHEW KOTTELENBERG


"The Lord is faithful to all His promises, and loving toward all He has made." Psalm 145: 13b

This blog is about our eight year old son Tyson. Tyson was born with serious complex congenital heart defects, (Hypoplastic Right Ventricle, Tricuspid Atresia, Coarctation of Aorta, Transposed Great Arteries, with VSD and ASD.)
In short, the right side of his heart is completely under-developed (he has half a heart,) his main arteries are mixed up, and his aorta is narrow. He has undergone 3 open-heart surgeries and 5 heart cath procedures to try to 'repair' his heart. Sadly, Tyson has also been diagnosed with pulmonary vein stenosis, a fatal disease in the veins of his left lung. Typically, having the 3 palliative surgeries buys children with single ventricle hearts many years before eventually needing a transplant. But because of the narrow pulmonary veins, this increase in pressure is causing his blood to shunt the opposite way across his Fontan fenestration and surgeons are not able to close the fenestration. As a result, he remains on coumadin and is heading down the transplant road faster than we'd originally anticipated. He's still doing AMAZINGLY well all things considered. We entrust our dear son into the hands of God, knowing that in all things God works for the good of those who love Him!

Another New Surgery Date...

Hearing the voice of the Sick Kids' surgical co-ordinator always causes my stomache to drop....but this time it wasn't BAD news :)
Tyson's surgery has been bumped UP to Tuesday, December 7, instead of Wednesday. He is scheduled for the first case of the day, so Tuesday at 8 am. So glad to hear that! It meant a few phone calls to rearrange some details of my week's "plans" and it means I have to get moving quicker on a few things around here, but I am happy with this news.
Tyson is still healthy :) That liquid silver must be doing wonders for him because from time to time he has developed very teeny, tiny sniffles, but nothing ever materialized into anything serious, and the flu bug completely passed him by, PRAISE THE LORD!!
Mel:)

2 comments:

Sara said...

Yay

Anonymous said...

May the Lord give strength for today and bright hope for tomorrow as Tyson has his surgery today! May things go well that it may have the desired results! May the Lord bless also the hands of the doctor!! Thinking of you today!!

Pete & Sheila & children