"You are my God and I will praise you;
You are my God, and I will exalt you.
Give thanks to the LORD for He is good;
His love endures forever."
Psalm 118: 28, 29
When I arrived this morning, he right away started crying, "Mommy! Mommy!" He just wants Mom to rescue him from all his troubles. The Ng (feeding tube - which was never even used once) is out, and he is taking some fluids by mouth but they have to start slowly. He is having one ounce every hour or so, but only clear fluids yet. Later today maybe some milk and mayble some food. They want to make sure he is sitting up well and coughing out any mucous that is building up before they start him on milk, which would only worsen mucous. He sat up for a few seconds in bed, with me holding him up, but he din't enjoy it at all yet, he kept saying, "owie." Hopefully later today I'll be allowed to get him out of bed and cuddle with him.
TYSON IS IN STEP-DOWN ! ! !
I am so not used to this feeling! With past surgeries/pneumonias, Tyson suffered from prolonged intubation so he spent most of his time in CCCU and then a short period of time on 4D. This time he has spent less than 24 hours in CCCU, but we anticipate a longer stay on 4D than he is used to. Normally once he moves to 4D, he is so strong and well that he goes home within a few days of being there. But no, we don't expect to be home in a few days. Yes, Tyson is doing very well, but he is still very sick. He is back on O2 as needed; usually while he's sleeping they can turn it down, but when he's awake he needs a bit of extra help. Both the central lives in his neck are gone, one art line in his arm is gone, the PIVs in his hands and feet are gone. He is basically down to an art line in the wrist, and one PIV in the foot. Soon we hope to administer his meds orally too, once he is tolerating his drinks/food well. We've ordered him some soup for lunch, but only if he keeps his fluids down.
Thank you all so much for your prayers! THEY ARE WORKING! Keep lifting them up :)
Tyson is having a difficult time keeping fluids down, so they have him on a fluid only diet for now, until he tolerates fluids better. Juice, jello, soup broth, but no milk or anything to heavy yet. He took in too much juice too quickly, even though we were trying to pace him. The end result was a total bed change, clothing change, and one load of laundry. Usually we leave him in hospital gear and use hospital bedding until much later on...but we brought him his pillow from home, pajamas, blankie, and hockey blanket so he'd feel more "at home." Well that was a dumb move!
There is still something going on with his heart rate. The pace maker is still attached and set on back-up mode, so it can't go lower than a certain rate. The ECG revealed that the upper atriums in the heart are not pumping as hard as they should. But it can take a few weeks for the heart to regain its proper sinus rhythm. There is the possiblity of pacemaker surgery in the future if his heart doesn't figure it out on its own. I'm not sure what exactly that means as far as length of stay here, but we are not worried about it quite yet. I'm so not even worried about that yet, because it's only just ONE day post-op. Besides that, being in Step-Down is 20 times better than in CCCU. It's lighter and brighter, the rules are less stringent, it's less stressful, and it obviously means he's getting better :)
That's it for tonight. He's fighting on, so we're happy for God's answer to prayers there. We are so thankful that his life has once again been spared, and God is granting us more time for us to enjoy him. Keep praying for a smooth recovery and that he will start tolerating foods soon. And please pray that his heart will begin pacing itself properly on its own, so that he won't need pacemaker surgery in the future.