TYSON MATTHEW KOTTELENBERG

This blog is about our 14 year old son Tyson. Tyson was born with serious complex congenital heart defects, (Hypoplastic Right Ventricle, Tricuspid Atresia, Coarctation of Aorta, Transposed Great Arteries, with VSD and ASD.) In short, the right side of his heart is completely under-developed (he has half a heart,) his main arteries are mixed up, and his aorta is narrow. He has undergone 3 open-heart surgeries and 5 heart catheterization procedures to try to 'repair' his heart. Tyson also has severe narrowing in his pulmonary veins which are causing higher venous pressures. He's still doing AMAZINGLY well all things considered. We entrust our dear son into the hands of God, knowing that in all things God works for the good of those who love Him!

All Things Are Possible

“With man this is impossible, but with God all things are possible.” Matthew 19:26

When Tyson was born, we were told that the odds of him making it to his first birthday were questionable.  But with God, all things are possible and Tyson is now 11 years old. 

After he made it through all 3 risky open-heart surgeries, we asked his cardiologist about Tyson's long-term prognosis and he said that Tyson would never be able to run a marathon. But with God, all things are possible and this past weekend, Tyson ran a 3 km race with his school.

Because of Covid, the regional 3K race was cancelled but we were able to get together with 2 other small private schools in our area and hold a race at a local farm. Tyson did amazing! And he didn't even come in last...he placed 31st out of 34 runners. We had him training a few times over the summer to build up his endurance and to gage whether or not he could actually even run the whole thing. I was able to go along for a few of his practice runs with his school and he was able to finish the race each time. Although he's not the fastest runner, he comes across that finish line looking like he's capable of running another kilometer. 

Here he is crossing the finish line. 


I wish I could have continued recording a little longer at the end but my eyes were drowning in happy tears and I couldn't see very well anymore.  I wonder if the other moms who were watching with me understood why I was sobbing a little. 

MY BOY WHO WAS BORN WITH A HALF A HEART JUST DEFIED ALL ODDS AND COMPLETED A 3K RACE! 
“With man this is impossible, but with God all things are possible.” 

Having a snack after the race
Having a snack after the race

Tyson seems to be settling into a good routine with school now. The first week was really rough for him and he was so tired and extra sensitive about everything.  He cried every single day that week and when I'd ask him why, he'd just keep telling me how much he hates school and how it's just too hard for him. Once we got into a bit of a routine again though, he seems to be doing ok and is settling in alright.  It's always an adjustment for him after the summer holidays, but this was a long six month break so I can see why it would take some time to adjust again. 

Tyson has his annual cardiologist appointment coming up in November.  Also, as a follow-up to his last appointment in April, he'll be having a stress test to double check that everything is still ok with his heart function.  We always try to get all his appointments on the same day but this time we have too many of them so we're not able to.  So we have to go Monday, November 23 for a pulmonary function test and stress test, and results from a genome study we did back in 2018. Then on Wednesday, December 2 we go back again for a bone density scan, an abdominal ultrasound (to check up on his liver and kidneys) a clinic appointment with thrombosis (because he's anticoagulated) and then the routine ECHO, ECG, and a clinic appointment with his cardiologist. 

We will give you an update after those appointments. 

Melissa :)