TYSON MATTHEW KOTTELENBERG


"The Lord is faithful to all His promises, and loving toward all He has made." Psalm 145: 13b

This blog is about our eight year old son Tyson. Tyson was born with serious complex congenital heart defects, (Hypoplastic Right Ventricle, Tricuspid Atresia, Coarctation of Aorta, Transposed Great Arteries, with VSD and ASD.)
In short, the right side of his heart is completely under-developed (he has half a heart,) his main arteries are mixed up, and his aorta is narrow. He has undergone 3 open-heart surgeries and 5 heart cath procedures to try to 'repair' his heart. Sadly, Tyson has also been diagnosed with pulmonary vein stenosis, a fatal disease in the veins of his left lung. Typically, having the 3 palliative surgeries buys children with single ventricle hearts many years before eventually needing a transplant. But because of the narrow pulmonary veins, this increase in pressure is causing his blood to shunt the opposite way across his Fontan fenestration and surgeons are not able to close the fenestration. As a result, he remains on coumadin and is heading down the transplant road faster than we'd originally anticipated. He's still doing AMAZINGLY well all things considered. We entrust our dear son into the hands of God, knowing that in all things God works for the good of those who love Him!

New Surgery Date

Tyson's Glenn surgery got bumped from Thursday, April 9, 2009 to Thursday, April 16, 2009. As difficult as it can be to have the date changed on short notice, we are thankful for this change. Braden and Merrick's Easter Concert is on April 9 and the Easter long weekend follows so we would not have been able to attend their concert (and we already missed their Christmas assembly and many family get-togethers because of Tyson's Norwood surgery.) As much as the boys said they were ok with us having to miss their Easter concert, you should have seen their faces when we told them that Tyson's surgery was re-scheduled and we could now make it! They were thrilled!

Tyson is continuing to grow well. He is now over 15 pounds and sleeping quite well at nights He usually will sleep a 9-10 hour stretch for me! Can't complain about that! I don't want to speak too soon but it's now been over a week since I have gotten up earlier than 5 am...... !!!

Please keep Tyson in your prayers in the coming weeks, that he may stay healthy in preparation for the surgery, and that God will carry us all through as He did in December. We are being reminded daily of God's goodness and grace!

Till next time,
Mel:)

2 comments:

Sara said...

Little blessings always mean a lot too.☺

willowsprite said...

For sure! :)