TYSON MATTHEW KOTTELENBERG


"The Lord is faithful to all His promises, and loving toward all He has made." Psalm 145: 13b

This blog is about our eight year old son Tyson. Tyson was born with serious complex congenital heart defects, (Hypoplastic Right Ventricle, Tricuspid Atresia, Coarctation of Aorta, Transposed Great Arteries, with VSD and ASD.)
In short, the right side of his heart is completely under-developed (he has half a heart,) his main arteries are mixed up, and his aorta is narrow. He has undergone 3 open-heart surgeries and 5 heart cath procedures to try to 'repair' his heart. Sadly, Tyson has also been diagnosed with pulmonary vein stenosis, a fatal disease in the veins of his left lung. Typically, having the 3 palliative surgeries buys children with single ventricle hearts many years before eventually needing a transplant. But because of the narrow pulmonary veins, this increase in pressure is causing his blood to shunt the opposite way across his Fontan fenestration and surgeons are not able to close the fenestration. As a result, he remains on coumadin and is heading down the transplant road faster than we'd originally anticipated. He's still doing AMAZINGLY well all things considered. We entrust our dear son into the hands of God, knowing that in all things God works for the good of those who love Him!

Home Again! Monday, April 13, 2009

Yes, we are home! We got home back to Orangeville at about 3:00 pm on Monday afternoon. We stayed at Mom and Dad's for dinner before going home with all four of our little tykes.
Tyson is doing much better. He is still coughing a fair bit and his chest still sounds a little rattly but the antibiotics should clear things up nicely.
I am glad to say that Tyson didn't take long to figure out how to sleep in his own bed again. He went to sleep at 9:30 pm and wasn't up until 8 am this morning. So happy that he is back to his normal sleeping pattern. So far so good!
We go back to Sick Kid this week Thursday for a check-up to make sure things are staying in the right direction.
Thanks everyone for your prayers and words of encouragement. They mean so much to us and we are reminded again of how precious life is. We also entrust Tyson into God's Fatherly Hand.
Brian and Mel
Braden, Merrick, Kenya and Tyson

2 comments:

Sara said...

Yay! I guess they've rescheduled the 2nd surgery?

Garth and Alida said...

Great news....all the best!!