TYSON MATTHEW KOTTELENBERG


"The Lord is faithful to all His promises, and loving toward all He has made." Psalm 145: 13b

This blog is about our eight year old son Tyson. Tyson was born with serious complex congenital heart defects, (Hypoplastic Right Ventricle, Tricuspid Atresia, Coarctation of Aorta, Transposed Great Arteries, with VSD and ASD.)
In short, the right side of his heart is completely under-developed (he has half a heart,) his main arteries are mixed up, and his aorta is narrow. He has undergone 3 open-heart surgeries and 5 heart cath procedures to try to 'repair' his heart. Sadly, Tyson has also been diagnosed with pulmonary vein stenosis, a fatal disease in the veins of his left lung. Typically, having the 3 palliative surgeries buys children with single ventricle hearts many years before eventually needing a transplant. But because of the narrow pulmonary veins, this increase in pressure is causing his blood to shunt the opposite way across his Fontan fenestration and surgeons are not able to close the fenestration. As a result, he remains on coumadin and is heading down the transplant road faster than we'd originally anticipated. He's still doing AMAZINGLY well all things considered. We entrust our dear son into the hands of God, knowing that in all things God works for the good of those who love Him!

Going Home Soon - Easter Sunday 2009


"Thank the Lord and come with praise
Songs of jubilation raise!"

Keeping this one really short (honest!)
Tyson is doing great. He came off O2 today and both the Ng and the central line in his neck came out too. Now he only has a sats monitor on his foot (which we can take off anytime to go for a walk!)
Nurse Practitioner says we most likely can go home Monday. If not, for sure by Tuesday.
Yay!
Bye!
Mel:)
(Bet you didn't think I could keep it short, eh?)

5 comments:

Garth and Alida said...

yay! Glad to read about the good news - you guys look so happy!
Garth and Alida, S,N,J,N (trying to keep it short too!)

Mel said...

YAY!!! That is so exciting! We are soo happy to hear that things are going so well! Hope to see you again soon!! :)
Jay, Mel, Jaidynn and Mikayla

Grant and Marg Kottelenberg said...

Glad to hear that Tyson is getting better. All of you are always in our thoughts and prayers. We hope you get to come home soon. Lindsay and Shaelyn say "Hi!" Lindsay is very excited that catechism is done. Hope to see you all soon.
Grant & Marg and family

Joanneke said...

Hi Melissa!
I love the pictures you included. What a cutie!! It'll be so nice for you to be back home with the whole family again. God is faithful!
Love,
Joanneke

Anonymous said...

Wow that's great news!
Glad to hear everything is going well. You continue to be in our prayers.
Terrance, Charmaine, Andrew, Travis & Jared