TYSON MATTHEW KOTTELENBERG

This blog is about our 17 year old son Tyson. Tyson was born with serious complex congenital heart defects, (Hypoplastic Right Ventricle, Tricuspid Atresia, Coarctation of Aorta, Transposed Great Arteries, with VSD and ASD.) In short, the right side of his heart is completely under-developed (he has half a heart,) his main arteries are mixed up, and his aorta is narrow. He has undergone 3 open-heart surgeries and 5 heart catheterization procedures to try to 'repair' his heart. Tyson also has severe narrowing in his pulmonary veins which is causing higher venous pressures. He's still doing very well all things considered. We entrust our dear son into the hands of God, knowing that in all things God works for the good of those who love Him!

We're Still Here, But...

Tyson had a great sleep and woke up without oxygen this morning. He did well overnight so they turned it off at 4am. He was 83-84 when I woke up at 7, with no oxygen! But unfortunately it didn't last too long because he kept dipping into the 70s so he was on and off oxygen all morning, and has now been on it for most of the day. He's not super thrilled about O2 being back on again. But that's the ups and downs of hospital life.

His frustration didn't last too long though, because we were told that the Leafs were coming by his room this afternoon. He would have missed this if he went home today!


On the left behind Tyson is Jake McCabe (Tyson had to move over because McCabe is shorter than him.) On the right is Brandon Carlo. We weren't really sure who the guy in the back was, lol. They weren't allowed to come into our room because Tyson is "contagious," but they stood in the doorway and chatted with Ty for a few minutes. They also gave him a bag of autographed items. It sure made his day!




Cardiology update: The echo Tyson had done yesterday is unchanged from his last one, so that is good news! That means there's nothing happening within the heart that would lead us to believe that his lower oxygen is from declining heart function. 

Lungs update: He had another chest x-ray today because the team feels he should be progressing quicker than he has. X-ray shows worse pneumonia than what they saw on Sunday, so they've opted to change the antibiotic to something stronger that also covers a broader range. There is also a pocket of fluid in his left lung that wasn't there on Sunday, so if he doesn't show improvement from the antibiotic change within 24-48 hours, they will do an ultrasound on that. 

The nurse he has today is fabulous. His name is Cameron and every time he comes in, they chat up a storm about hockey, basketball, or the Xbox games Tyson is playing. There aren't too many male nurses that work here (mind you, there are more now than 17 years ago) but I feel like Tyson connects really well with them. So if you're reading this, and you're a male, and you're thinking of becoming a nurse, DO IT! The Tysons of the world need you!  

Home is not on the horizon yet, because Tyson has been on oxygen more often than not today. He has to wean off oxygen during the day and stay off all night while keeping his sats above 80 overnight, and then we will go home. Right now, that doesn't seem likely but that doesn't mean we can't all pray for a miracle, right? 






3 comments:

Anonymous said...

so sorry to hear that he has to stay again, Well one good thing he got to met some of the guys from his favorite team, All the best Tyson we will keep you in our prayer Love: Anut Mary

Anonymous said...

Praying for a miracle that Tyson's health improves. Take care.

Anonymous said...

Prayers are with you, Pat and Mike Lang