Unfortunately we are not going home today. Ty had a really good evening last night with sats at 89-90 without oxygen. He was so happy and had a good time playing Xbox with his friends online.
He slept well from 12am-4:30am until the nurse came in for vitals. Then he couldn't get back to sleep because he was 81-82 so he was too scared to go back to sleep. The doctors want him above 80 when sleeping and above 85 when awake. Ty knows that his sats drop when he's sleeping, and he really didn't want to have the oxygen put back on, so he just didn't sleep. Then suddenly he started desatting to 78-79 for several minutes, then he'd go back to low 80s, then back down to high 70s. This went on for a while between 5:30-6:15am. He tried changing positions, coughing, deep breaths, etc. but nothing worked so at 6:20 the nurse put him back on oxygen. He was weaned off oxygen to room air again by 8am, but shortly afterwards he was back to mid 70s. So now he's back on oxygen again.
The doctor has ordered an echo to see if it's heart related. The echo is happening right now as we speak. I imagine we won't hear results until tomorrow.
The nasal swab taken in emerg on Sunday came back positive for RSV. RSV can be challenging for healthy people to overcome, let alone someone with an underlying heart condition. The doctors said it's not uncommon for people with RSV to feel better one day and then go downhill the next day. We also can't forget that Ty's not just a cardiac kid, but he also really only has one good lung. He has stenosis in his left pulmonary artery (and veins) and the blood flow distribution between the right and left side is 88% to 12%. So that's a huge disadvantage. And the pneumonia always seems to be in the left lung.
Tyson is pretty discouraged about being back on oxygen and being here longer, as expected. Hospital life seems to always be one step forward, two steps back. Prayers for patience, for both of us, are always appreciated.
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