TYSON MATTHEW KOTTELENBERG


"The Lord is faithful to all His promises, and loving toward all He has made." Psalm 145: 13b

This blog is about our eight year old son Tyson. Tyson was born with serious complex congenital heart defects, (Hypoplastic Right Ventricle, Tricuspid Atresia, Coarctation of Aorta, Transposed Great Arteries, with VSD and ASD.)
In short, the right side of his heart is completely under-developed (he has half a heart,) his main arteries are mixed up, and his aorta is narrow. He has undergone 3 open-heart surgeries and 5 heart cath procedures to try to 'repair' his heart. Sadly, Tyson has also been diagnosed with pulmonary vein stenosis, a fatal disease in the veins of his left lung. Typically, having the 3 palliative surgeries buys children with single ventricle hearts many years before eventually needing a transplant. But because of the narrow pulmonary veins, this increase in pressure is causing his blood to shunt the opposite way across his Fontan fenestration and surgeons are not able to close the fenestration. As a result, he remains on coumadin and is heading down the transplant road faster than we'd originally anticipated. He's still doing AMAZINGLY well all things considered. We entrust our dear son into the hands of God, knowing that in all things God works for the good of those who love Him!

FLORIDA - Day Four

 We spent Tuesday enjoying all the Village has to offer.  We began the day by visiting the Ice Cream Parlour and having ice cream for breakfast.  Oh yeah, baby.  A few sore tummies later...and we're off to the playground.  Next the pool.  A quick lunch ordered in from Katie's Kitchen, and then nap time.  Addisyn, Tyson, and Kenya all needed a long nap if we want to enjoy Mayor Clayton's Birthday Bash tonight.  Brian took Braden and Merrick out mini-golfing while I spent the afternoon behind the computer blogging. I don't want to forget this trip and all the little details.  We are having the time of our lives.  At Give Kids the World, they really DO give kids the world.  We all feel so so special.
 
Our sweetie Addi enjoying the swings at Matthew's Boundless Playground
Kenya on the slide
Merrick playing 'Grounders'
Braden being a putz LOL




Kenya soaking in the sun's rays

All snug as a bug after a swim in the pool

Braden and Merrick beating each other up in the water

Brian took Braden and Merrick out to Tampa Bay to see the Lightning try to beat the Maple Leafs tonight.  Tickets here in Florida are way cheaper than they are in Toronto, so I totally understand their need to see their mighty Leafs play tonight.  They left at about 5pm and I had dinner with the youngest three, and then we attended Mayor Clayton's Birthday Bash.  The kids had a lot of fun, and so did I!
Meeting Patches the Dog during our dinner at The Gingerbread House

Ms Merry, the  Mayor's wife, is embarrassed because Tyson kissed her on the cheek.

Tyson with Patches again

Some face painting

Ms Merry was enamored with Addisyn

Mayor Clayton signing Kenya and Tyson's autograph books

No party is complete without some serious dancing! 



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