TYSON MATTHEW KOTTELENBERG


"The Lord is faithful to all His promises, and loving toward all He has made." Psalm 145: 13b

This blog is about our eight year old son Tyson. Tyson was born with serious complex congenital heart defects, (Hypoplastic Right Ventricle, Tricuspid Atresia, Coarctation of Aorta, Transposed Great Arteries, with VSD and ASD.)
In short, the right side of his heart is completely under-developed (he has half a heart,) his main arteries are mixed up, and his aorta is narrow. He has undergone 3 open-heart surgeries and 5 heart cath procedures to try to 'repair' his heart. Sadly, Tyson has also been diagnosed with pulmonary vein stenosis, a fatal disease in the veins of his left lung. Typically, having the 3 palliative surgeries buys children with single ventricle hearts many years before eventually needing a transplant. But because of the narrow pulmonary veins, this increase in pressure is causing his blood to shunt the opposite way across his Fontan fenestration and surgeons are not able to close the fenestration. As a result, he remains on coumadin and is heading down the transplant road faster than we'd originally anticipated. He's still doing AMAZINGLY well all things considered. We entrust our dear son into the hands of God, knowing that in all things God works for the good of those who love Him!

Huge Delivery from Make A Wish Foundation


 WE'RE   GOING   TO   DISNEY   WORLD!!!!

We received a big delivery from the Make A Wish Foundation this week.  The kids (and I) have been waiting for this package for months, knowing that it contains all the info we need for Tyson's wish trip to Walt Disney World to meet Spiderman and Mickey Mouse. 


We are blessed to be able to spend the week at Give Kids the World Resort, a resort only for wish kids and their families.  This is an all-inclusive resort, so we won't be paying for a thing!  
AND they've given us a cheque in the sum of a very large amount of money to use as spending money and souvenirs!    
AND they are picking us up in a LIMOUSINE!

The limo will be picking us up at our doorstep at 2:30 in the morning!!!  That is soooo early, I don't think we're going to sleep the night before!  The reason we're being picked up so early is because our flight leaves Toronto at 6:15am (check in at least 2-3 hours early) and we arrive in Orlando at 9:15am.  So the advantage to this is that we'll have the entire day to get settled into our resort before our fun begins.  Brian or I will attend an orientation session the day we arrive, so that we know where we have to catch the shuttle which takes us to and from the Disney Parks each day, and pick up our tickets for the week.

There are so many fun things to do at Give Kids the World! GKTW is a 70 acre park resort with a big pool, a splash pad, restaurants, an ice cream parlour (so you can have ice cream for breakfast - can't wait!) mini golf, pony rides....and the Disney characters visit GKTW often for autographs and pictures. 
Our family will also receive tickets to the 4 Disney Parks, Sea World, and Universal Studios.  Tyson is really looking forward to meeting Spiderman at Universal, and we will also be booking a photo op with Spiderman at the GKTW resort on Friday morning. 


Take a peek at this link to see where we will spend our week :)
http://www.gktw.org/about/families.php

 Here are some pics of the day we opened the huge gift box from Make A Wish.

Tyson doing the honours of opening the box first
The kids all digging in...
Tyson received his very own camera!
These are some of the gifts Tyson received
Addisyn got spoiled too
Addisyn in her new Disney hat
Kenya with her Little Mermaid doll.  I think she likes it!
Merrick posing with his gifts.  I think he's excited!
Kenya's gifts
Braden's gifts

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