We have him enrolled in our school soccer league which he is really loving. He acts so 'normal' out there, passing and kicking the ball, even scoring a few goals!
We also enjoyed a weekend of camping with the Spanninga family at Valens on the July long weekend.
One morning Tyson forgot his goggles so his teacher lent him a pair!!
Tyson also had an ENT appointment at Sick Kids last Monday. He saw the local ENT Dr Riddell the week after his 911 nosebleed, and Riddell said there were 5 or 6 spots in his nose that would need to be cauterized. Tyson was referred to Sick Kids because they would have to do sedation for the cauterization. However, when we saw the Sick Kids ENT, he said they typically don’t cauterize kids on Coumadin because they will just bleed and bleed. They will only do it if absolutely necessary because they are experiencing severe bleeding often. They’ve also found that kids who do end up needing cauterization from severe nosebleeds are healed for about a month or two, and then the vessels start bleeding elsewhere in the nose. His recommendation is to leave Tyson alone for the summer while he’s well and IF the bleeds come back again this winter and we do end up with another emergency situation, then he’d consider doing the cauterization. BUT this would only be done if Tyson could be off Coumadin for a period of two weeks – to ensure that the vessels are fully healed with ‘normal’ blood clotting factors first, before re-starting Coumadin. He’d have to get permission from Tyson’s cardiologist first….but we highly doubt that Tyson will be allowed to be off Coumadin for two weeks. We have to weigh the risks with the benefits…risk of stroke or risk of nosebleeds. Hmmm…that’s a tough one ;)
So the ENT sent us home with no intervention (we’re always ok with that!) and gave us a slew of tips for nosebleed prevention (which of course we’ve been doing for two years now!) and he says if Tyson can stick it out, it’s safer not to cauterize. So here’s hoping and praying that our prevention routine will continue to prevent the nosebleeds. We’re kinda all going with the idea that Tyson’s 911 nosebleed was mainly due to being on oxygen nasal prongs and the dry hospital air. So, as long as he doesn’t develop any more serious pneumonias requiring O2, here’s hoping and praying we can stay nosebleed free too?!?!
That’s the update for today. Hope you all are enjoying your summer!