TYSON MATTHEW KOTTELENBERG


"The Lord is faithful to all His promises, and loving toward all He has made." Psalm 145: 13b

This blog is about our eight year old son Tyson. Tyson was born with serious complex congenital heart defects, (Hypoplastic Right Ventricle, Tricuspid Atresia, Coarctation of Aorta, Transposed Great Arteries, with VSD and ASD.)
In short, the right side of his heart is completely under-developed (he has half a heart,) his main arteries are mixed up, and his aorta is narrow. He has undergone 3 open-heart surgeries and 5 heart cath procedures to try to 'repair' his heart. Sadly, Tyson has also been diagnosed with pulmonary vein stenosis, a fatal disease in the veins of his left lung. Typically, having the 3 palliative surgeries buys children with single ventricle hearts many years before eventually needing a transplant. But because of the narrow pulmonary veins, this increase in pressure is causing his blood to shunt the opposite way across his Fontan fenestration and surgeons are not able to close the fenestration. As a result, he remains on coumadin and is heading down the transplant road faster than we'd originally anticipated. He's still doing AMAZINGLY well all things considered. We entrust our dear son into the hands of God, knowing that in all things God works for the good of those who love Him!

HOME!


We are so happy to report that we are HOME!  Tyson's O2 sats are back to normal, his energy is mostly back to normal and the air entry into his lungs is much better.  He still coughs a fair bit with activity, but I tried hard to give him a quiet day today.  He won't be ready to return to school tomorrow yet so we'll aim for Thursday if all goes well.  He will continue on oral antibiotics for the next 5 days. 

His brothers and sisters were SO excited to see him home.  We’re feeling so blessed that this was just a short stay, and happy that we caught things in time before they got too serious (even though we were all praying he could hold off on needing oxygen help until AFTER the Superheroes Bowl…but oh well.  This isn’t the first time our family has missed out on exciting events, or had some members missing, and I’m sure it won’t be the last.) 

Tyson set two new records for himself: longest stretch hospital-free (14 months) & shortest hospital stay (3 nights/2 days.)  

Praising God for His goodness!  Thank-you all for your prayers.

Brian and Melissa

1 comment:

Anonymous said...

So happy to hear!