"The Lord is faithful to all His promises, and loving toward all He has made." Psalm 145: 13b

This blog is about our nine year old son Tyson. Tyson was born with serious complex congenital heart defects, (Hypoplastic Right Ventricle, Tricuspid Atresia, Coarctation of Aorta, Transposed Great Arteries, with VSD and ASD.)
In short, the right side of his heart is completely under-developed (he has half a heart,) his main arteries are mixed up, and his aorta is narrow. He has undergone 3 open-heart surgeries and 5 heart cath procedures to try to 'repair' his heart. Sadly, Tyson has also been diagnosed with pulmonary vein stenosis, a fatal disease in the veins of his left lung. Typically, having the 3 palliative surgeries buys children with single ventricle hearts many years before eventually needing a transplant. But because of the narrow pulmonary veins, this increase in pressure is causing his blood to shunt the opposite way across his Fontan fenestration and surgeons are not able to close the fenestration. As a result, he remains on coumadin and is heading down the transplant road faster than we'd originally anticipated. He's still doing AMAZINGLY well all things considered. We entrust our dear son into the hands of God, knowing that in all things God works for the good of those who love Him!

Niagara Falls & Darien Lake

Just a few pics of our weekend getaway to Niagara Falls and Darien Lake during the last week of August.
First we did the Cardiac Kids video shoot in Mississauga (pics of that and a link to the website to follow shortly...) 

Merrick took this picture with his camera

We enjoyed dinner at the Rainforest Cafe in Niagara Falls
Taken at Rainforest Cafe with Braden's camera
Time for some craziness at the Ripley's Believe it or Not Museum
Trying to see if we can split our tongue like his

Rides at Darien Lake

Ride of Steel (Braden and Merrick went on that one.)

Some bumper car fun
Addi remained very content in her stroller for a good part of the weekend

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