TYSON MATTHEW KOTTELENBERG


"The Lord is faithful to all His promises, and loving toward all He has made." Psalm 145: 13b

This blog is about our eight year old son Tyson. Tyson was born with serious complex congenital heart defects, (Hypoplastic Right Ventricle, Tricuspid Atresia, Coarctation of Aorta, Transposed Great Arteries, with VSD and ASD.)
In short, the right side of his heart is completely under-developed (he has half a heart,) his main arteries are mixed up, and his aorta is narrow. He has undergone 3 open-heart surgeries and 5 heart cath procedures to try to 'repair' his heart. Sadly, Tyson has also been diagnosed with pulmonary vein stenosis, a fatal disease in the veins of his left lung. Typically, having the 3 palliative surgeries buys children with single ventricle hearts many years before eventually needing a transplant. But because of the narrow pulmonary veins, this increase in pressure is causing his blood to shunt the opposite way across his Fontan fenestration and surgeons are not able to close the fenestration. As a result, he remains on coumadin and is heading down the transplant road faster than we'd originally anticipated. He's still doing AMAZINGLY well all things considered. We entrust our dear son into the hands of God, knowing that in all things God works for the good of those who love Him!

We're Home!

We’re home!  Dr Murphy said that even though Tyson has been weaned off the oxygen and the antibiotics are working well, he can still hear that the pneumonia isn’t 100% gone.  He said we could go home but we had to promise that Tyson will rest for the next two days and I won’t let him run any marathons.  He was sent home on oral antibiotics to continue to treat the infection.  We will also continue with his ventolin and pulmicort, we will see his family doctor as soon as possible next week, and then follow-up with another chest x-ray in the next month to make sure the infection is completely gone.  Because it was completely respiratory, we won’t have to follow-up with cardiology at Sick Kids.  *phew* I was hoping we can make it that six months in between Sick Kids visits, as we’ve never gone longer than 5 months between visits ever.  We see cardiology again at the end of May.    
I love how his eyes are the exact same colour as his Sick Kids scrubs
 
Although he is still quite tired, (and gruuuuuumpy!) Tyson is very glad to be home and so is the whole family.  We once again give praise and thanks to God who has allowed Tyson to heal and come home.  Thanks for all your prayers that Tyson would be off oxygen overnight, they worked!  We both had a pretty restless sleep last night so we are really looking forward to our own beds again!  I’ve definitely seen enough of Headwaters Hospital for a while now. 
 
Thanks to everyone who helped our family out in the way of providing meals, bringing food to the hospital, spoiling Tyson with toys and treats, taking care of Addisyn, and most of all for your prayers.  Please continue to pray for Tyson’s health in the month to come as he completely recovers from the pneumonia. 
 
Brian and Melissa

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