Very very soon we will have the privilege of being able to check Tyson's INR levels from the comfort of our own home! We are so excited to announce that we will be getting a CoaguChek self-monitoring system, funded completely by Cardiac Kids! (See their website www.cardiackids.ca. If you click on "Meet the Cardiac Kids" you will see Tyson's story featured.)
So for those of you who don't know what the CoaguChek system means to us,
IT MEANS NO MORE BLOOD WORK TO CHECK TYSON'S INR LEVELS!
This is super exciting to us! Because Tyson is on a blood thinner, he has to have blood work every 2-3 weeks to monitor his INR levels and make sure he is on the right dose of coumadin (warfarin.) Too little coumadin and he runs the risk of blood clotting around his fenestration in his heart, which could cause a stroke. Too much coumadin and his blood won't clot quickly enough and he could bleed out...especially concerning if he has a head injury while his INR level is too high. This could cause bleeding in the brain...)
We asked Tyson's CCAC case manager to look into where we can get a CoaguChek and there is only one certified pharmacist in the area that can sell the device and train us how to use it. You need a special prescription for it, you also need to be trained on how to use it, and not just any pharmacy can actually purchase the device. The pharmacist works at Brampton Civic hospital and he is willing to come to our house and give us the special training on how to use it.
So now we are waiting for Tyson's Thrombosis Dr to get back from holidays so she can prescribe the CoaguChek. From there, she will fax the prescription to the pharmacy in Brampton, and they will bill Cardiac Kids directly. We won't even have to see the bill! The CCAC case manager said she will also ask around to other foundations to see if anyone can help us cover the cost of the test strips too, since they are also pretty expensive.
We are so blessed to not only have a great health care system in Ontario, but we also have access to some wonderful organizations that help us cover the costs of Tyson's medical supplies and equipment! God is so good to us and indeed He takes care of us!