TYSON MATTHEW KOTTELENBERG


"The Lord is faithful to all His promises, and loving toward all He has made." Psalm 145: 13b

This blog is about our eight year old son Tyson. Tyson was born with serious complex congenital heart defects, (Hypoplastic Right Ventricle, Tricuspid Atresia, Coarctation of Aorta, Transposed Great Arteries, with VSD and ASD.)
In short, the right side of his heart is completely under-developed (he has half a heart,) his main arteries are mixed up, and his aorta is narrow. He has undergone 3 open-heart surgeries and 5 heart cath procedures to try to 'repair' his heart. Sadly, Tyson has also been diagnosed with pulmonary vein stenosis, a fatal disease in the veins of his left lung. Typically, having the 3 palliative surgeries buys children with single ventricle hearts many years before eventually needing a transplant. But because of the narrow pulmonary veins, this increase in pressure is causing his blood to shunt the opposite way across his Fontan fenestration and surgeons are not able to close the fenestration. As a result, he remains on coumadin and is heading down the transplant road faster than we'd originally anticipated. He's still doing AMAZINGLY well all things considered. We entrust our dear son into the hands of God, knowing that in all things God works for the good of those who love Him!

Sunday, May 15, 2011

*PHEW* We just squeaked by from another hospital stay with Tyson. As I mentioned in my last post, he's been fighting a cold. We thought it was getting better, but his sats have been dropping. This morning when I went to get him up for church, his fingers were very purple. The first thing I always think when I see this is that he must be cold. But he was dressed very warmly and his hands were nice and toasty warm. His lips were also more dusky than normal. Brian and I decided to take him in to Headwaters ER to get a sats check. Thankfully we were able to be seen immediately :) At triage, his sats were low 70s. NOT good! He needs to be above 80%, especially because he's already had his Fontan surgery. A chest x-ray revealed a small amount of pneumonia on the right middle lobe, and he also has a double ear infection (which he never once complained about LOL! Tough kid!) He was given a ventolin mask and within 10 minutes his sats were back up to 81. Still not the best number in the world, but the ER dr said his chest x-ray didn't give any hint of heart failure (they look for a cloudy film around the lungs.) So he wrote a prescription for some antibiotics to hopefully kill both the ear infections and the pneumonia, and sent us on our way home! Yay, that is the first time he's had a trip to ER and he got to go home!

We will keep a close eye on him this week and if his colour deteriorates again, we'll be giving his cardiologist a call.

In the meantime, your prayers are always appreciated!

Mel:)

1 comment:

Mel said...

Good to hear that all seems to be handled...praying as usual! Love you and let me know if you need anything!! :)