TYSON MATTHEW KOTTELENBERG


"The Lord is faithful to all His promises, and loving toward all He has made." Psalm 145: 13b

This blog is about our eight year old son Tyson. Tyson was born with serious complex congenital heart defects, (Hypoplastic Right Ventricle, Tricuspid Atresia, Coarctation of Aorta, Transposed Great Arteries, with VSD and ASD.)
In short, the right side of his heart is completely under-developed (he has half a heart,) his main arteries are mixed up, and his aorta is narrow. He has undergone 3 open-heart surgeries and 5 heart cath procedures to try to 'repair' his heart. Sadly, Tyson has also been diagnosed with pulmonary vein stenosis, a fatal disease in the veins of his left lung. Typically, having the 3 palliative surgeries buys children with single ventricle hearts many years before eventually needing a transplant. But because of the narrow pulmonary veins, this increase in pressure is causing his blood to shunt the opposite way across his Fontan fenestration and surgeons are not able to close the fenestration. As a result, he remains on coumadin and is heading down the transplant road faster than we'd originally anticipated. He's still doing AMAZINGLY well all things considered. We entrust our dear son into the hands of God, knowing that in all things God works for the good of those who love Him!

Mon. March 14, 2011 - Tyson is in Cardiac Critical Care Unit

Tyson is in the Cardiac Critical Care Unit at Sick Kids. He is on CPAP (in between O2 mask and a ventilator.) Poor guy worked VERY hard to breathe today....an echo this afternoon showed that at this time it does not appear to be a cardiac issue (they don't think...) but more likely a form of pneumonia or lung infection.
Useless fact 101: It takes 16 minutes to get to Sick Kids in a helicopter....

Please pray for our Mr. T

5 comments:

Tanya said...

Definitely praying for you. Take care! T

Anonymous said...

Praying for strength for you all and healing for Tyson!!
A big hug,
MaryLynne

Garth said...

Love you, sister and nephew (of course the others, too!)

Anonymous said...

praying for you....
jkjajhl

Aunt Rita said...

Hoping to hear something soon sweeties! Praying that God is granting the prayers that are prayed in earnest for li'l Tyson the last 24 hours....
Keep strong Brian and Melissa! God is with you every second!