TYSON MATTHEW KOTTELENBERG


"The Lord is faithful to all His promises, and loving toward all He has made." Psalm 145: 13b

This blog is about our eight year old son Tyson. Tyson was born with serious complex congenital heart defects, (Hypoplastic Right Ventricle, Tricuspid Atresia, Coarctation of Aorta, Transposed Great Arteries, with VSD and ASD.)
In short, the right side of his heart is completely under-developed (he has half a heart,) his main arteries are mixed up, and his aorta is narrow. He has undergone 3 open-heart surgeries and 5 heart cath procedures to try to 'repair' his heart. Sadly, Tyson has also been diagnosed with pulmonary vein stenosis, a fatal disease in the veins of his left lung. Typically, having the 3 palliative surgeries buys children with single ventricle hearts many years before eventually needing a transplant. But because of the narrow pulmonary veins, this increase in pressure is causing his blood to shunt the opposite way across his Fontan fenestration and surgeons are not able to close the fenestration. As a result, he remains on coumadin and is heading down the transplant road faster than we'd originally anticipated. He's still doing AMAZINGLY well all things considered. We entrust our dear son into the hands of God, knowing that in all things God works for the good of those who love Him!

Echo, ECG, and Cardiologist Appt: Wednesday, August 25, 2010

"When I said, 'My foot is slipping,' your love, O LORD, supported me. When anxiety was great within me, your consolation brought joy to my soul." Psalm 94: 18, 19

Ok, so this isn't really an update on any changes in Tyson's condition but I am just feeling an increasing urge to blog today because I am feeling the anxiety slipping in again. Tyson has a echocardiogram, ECG, and appointment with his cardiologist this Wednesday. I am really hoping that by then we will have some sort of idea when they plan on doing this surgery and whether or not they are planning one surgery or two. Argh, I just want to know already! It would be so nice to be able to close this chapter of Tyson's life and turn the pages to a new chapter :)

Reflecting on the words from a daily devotional I subscribe to, which focused on Psalm 94, I am overwhelmed at God's presence near me and within me. The comfort He brings when I am under siege, the strength He offers when I am weak, the courage He gives when I am under attack, and the hope He instills when all seems hopeless - - these gifts of His presence are precious to me. Without His presence I would not know where to go or why I am here.

If you are still reading this, you by now know that I need your prayers. Prayers that God will grant us His peace, and that He will grant us all the patience we need as we await answers. Tyson, of course, needs your prayers too. Pray that God will continue His goodness and grace towards our little guy, that he can continue to travel on the road that he is on, and that he can continue to grow and develop the way he has been :) God is so good!

1 comment:

Sara said...

What devotional is it?