TYSON MATTHEW KOTTELENBERG


"The Lord is faithful to all His promises, and loving toward all He has made." Psalm 145: 13b

This blog is about our nine year old son Tyson. Tyson was born with serious complex congenital heart defects, (Hypoplastic Right Ventricle, Tricuspid Atresia, Coarctation of Aorta, Transposed Great Arteries, with VSD and ASD.)
In short, the right side of his heart is completely under-developed (he has half a heart,) his main arteries are mixed up, and his aorta is narrow. He has undergone 3 open-heart surgeries and 5 heart cath procedures to try to 'repair' his heart. Sadly, Tyson has also been diagnosed with pulmonary vein stenosis, a fatal disease in the veins of his left lung. Typically, having the 3 palliative surgeries buys children with single ventricle hearts many years before eventually needing a transplant. But because of the narrow pulmonary veins, this increase in pressure is causing his blood to shunt the opposite way across his Fontan fenestration and surgeons are not able to close the fenestration. As a result, he remains on coumadin and is heading down the transplant road faster than we'd originally anticipated. He's still doing AMAZINGLY well all things considered. We entrust our dear son into the hands of God, knowing that in all things God works for the good of those who love Him!

HAPPY FIRST BIRTHDAY TY!


On Saturday, November 21, 2009, Tyson celebrated his first birthday with family and friends. We hosted a come-and-go birthday party in the basement of the church. Here are some highlights.

Oh, and by the way, Tyson is crawling! Yay! He started on Wednesday just before his birthday, and he is now off to the races! You should have seen how fast he could crawl when he was going for the hockey sticks! I have finally admitted that the love for hockey is not a learned thing, but it really is born in them. I think it comes with the last name "Kottelenberg." *sigh* I guess there's just nothing I can do about it. I might as well just give up. LOL




















DIG IN!
Tyson sure got spoiled!
Playing with his gifts at home.