TYSON MATTHEW KOTTELENBERG


"The Lord is faithful to all His promises, and loving toward all He has made." Psalm 145: 13b

This blog is about our eight year old son Tyson. Tyson was born with serious complex congenital heart defects, (Hypoplastic Right Ventricle, Tricuspid Atresia, Coarctation of Aorta, Transposed Great Arteries, with VSD and ASD.)
In short, the right side of his heart is completely under-developed (he has half a heart,) his main arteries are mixed up, and his aorta is narrow. He has undergone 3 open-heart surgeries and 5 heart cath procedures to try to 'repair' his heart. Sadly, Tyson has also been diagnosed with pulmonary vein stenosis, a fatal disease in the veins of his left lung. Typically, having the 3 palliative surgeries buys children with single ventricle hearts many years before eventually needing a transplant. But because of the narrow pulmonary veins, this increase in pressure is causing his blood to shunt the opposite way across his Fontan fenestration and surgeons are not able to close the fenestration. As a result, he remains on coumadin and is heading down the transplant road faster than we'd originally anticipated. He's still doing AMAZINGLY well all things considered. We entrust our dear son into the hands of God, knowing that in all things God works for the good of those who love Him!

A Picture Says a Thousand Words



"Look Mom! No breathing tube!"

8 comments:

Lea and Derek said...

YAY!!!! Looking good big guy!

Anonymous said...

Yippeeeeeeee!
Way to go Tyson you must have very happy parents!!
k

Johnand Hilda Spanninga said...

Awesome!!!
Today we heard a couple of good sermons on how God is near. This just proves it. Call and He will answer!!!!

Henry and Jules said...

I bet his nostrils are feeling better :) Isn't it great to be able to see his face without tubes and tape all over it!!! Hang in there!
Henry and Julia

Mel and Jay said...

YAY!!!!!!!!!!!!!!! That's sooo much better!!!!!!

Scott, Tanya, Kate and Alex said...

Looking good ... see you soon!

Chris & Vicki said...

Ah Mel & Brian - God is good! Tyson looks great... feels good to finally be able to post some pics, hey?! Love ya!

Anonymous said...

woo hoo !!
jac