TYSON MATTHEW KOTTELENBERG


"The Lord is faithful to all His promises, and loving toward all He has made." Psalm 145: 13b

This blog is about our eight year old son Tyson. Tyson was born with serious complex congenital heart defects, (Hypoplastic Right Ventricle, Tricuspid Atresia, Coarctation of Aorta, Transposed Great Arteries, with VSD and ASD.)
In short, the right side of his heart is completely under-developed (he has half a heart,) his main arteries are mixed up, and his aorta is narrow. He has undergone 3 open-heart surgeries and 5 heart cath procedures to try to 'repair' his heart. Sadly, Tyson has also been diagnosed with pulmonary vein stenosis, a fatal disease in the veins of his left lung. Typically, having the 3 palliative surgeries buys children with single ventricle hearts many years before eventually needing a transplant. But because of the narrow pulmonary veins, this increase in pressure is causing his blood to shunt the opposite way across his Fontan fenestration and surgeons are not able to close the fenestration. As a result, he remains on coumadin and is heading down the transplant road faster than we'd originally anticipated. He's still doing AMAZINGLY well all things considered. We entrust our dear son into the hands of God, knowing that in all things God works for the good of those who love Him!

Updated Pictures February 2009


Soaking in the tub












Chillaxin' in the bouncy chair

His cheeks are getting chubbier....









"Thanks for lending me your bumbo chair, Callum!"















First smile caught on camera












2 comments:

Tanya said...

Hi ... hit the link by accident, didn't think there'd be anything new ... but surprise!! Great pictures! He is looking REALLY well! Hope everything goes smoothly on Wednesday. We need to come visit some time soon so I can cuddle him; haven't held him nearly enough ... !!

Melanie said...

AAWWWWWWWW that smile picture is SOOOOOOO CUTE!!!!!!!!!! Yay!! You should try to get a video of him talking and post it on here too!!