TYSON MATTHEW KOTTELENBERG

This blog is about our 16 year old son Tyson. Tyson was born with serious complex congenital heart defects, (Hypoplastic Right Ventricle, Tricuspid Atresia, Coarctation of Aorta, Transposed Great Arteries, with VSD and ASD.) In short, the right side of his heart is completely under-developed (he has half a heart,) his main arteries are mixed up, and his aorta is narrow. He has undergone 3 open-heart surgeries and 5 heart catheterization procedures to try to 'repair' his heart. Tyson also has severe narrowing in his pulmonary veins which is causing higher venous pressures. He's still doing AMAZINGLY well all things considered. We entrust our dear son into the hands of God, knowing that in all things God works for the good of those who love Him!

Tyson is Home!

I am writing this update from the comfort of our own home.  Tyson had a good night last night. He only desatted under 80 once and it resolved quickly, so he didn't need any O2 overnight 🙌

In the morning the doctor came in and asked Tyson to go for a walk up and down the hall to test his energy and see what his sats did during activity. He desatted to high 70s after the walk, and he was quite tired and breathless, he but the sats did come back up within a few minutes of getting back to bed and after some coughing. The doctor said he likely could cough for a few weeks yet, and said we could go home as long as Tyson rests for a few days and that it's also good to do short walks to keep things moving in the lungs. 

Because of exams this week and then the turn around days, his first day of 2nd semester isn’t until Thursday, so we'll need to follow up with our family doctor this week before he goes to school to make sure he's all the way clear.

He's allowed to do Phys Ed (and I’m assuming that also means basketball) as long as he feels well enough and if he's back to his baseline energy and O2 level. 

He slept all the way home and for most of the afternoon. His sats haven't been stellar since we got home so we are strictly minimizing his activity until he's fully recovered. 

We are always so grateful for the level of care we receive at SickKids. It's such a blessing that we have this world-renown hospital right in our backyard. Everyone we have encountered there has been competent, knowledgeable, and sympathetic towards Tyson in every way. We are thankful for the doctors, nurses, respiratory therapists, and everyone else involved in his care. 

I also wanted to take a moment to say thank you to all of our family, friends, church community, and SickKids family for all the kindness expressed towards us during this hospital stay. Your prayers, texts, visits, gift cards, and meals are so greatly appreciated. It is such a gift to belong to a wonderful community who cares for us in times of need. Many times today I was brought to tears from the overwhelming support we have received this past week and the realization that God has indeed carried us. We truly are blessed.